Month: January 2012

Shire launches the first Spanish website for health professionals fully dedicated to Fabry disease.

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Shire launches the first Spanish for health professionals website totally dedicated to the disease of Fabry.

-www.objetivofabry.elsevier.es will facilitate the diagnoses and more quickly identify the effects of the disease to impact positively on the improvement of the quality of life of patients with Fabry

Madrid, January 2012.- Shire HGT, with the collaboration of Elsevier, has created the web aim Fabry, the first web site Spanish for health professionals fully dedicated to Fabry disease. The purpose is to keep informed the Community scientific on any developments on the pathology and to consult scientific evidence and share case studies and knowledge about this disease of difficult diagnosis and treatment.

The page has a bibliographic section where professionals can consult the main studies published on Fabry disease. In addition, it has featured work, an agenda where the dates on conferences and seminars where analyzes Fabry disease and a section where users can share their clinical cases are collected. Thus, the scientific community already has an interactive portal to be able to turn when you have to deal with cases of patients with Fabry disease, with option to move and share their doubts and concerns with other specialists.

Fabry disease is a minority, disease suffering from approximately 1 of every 117,000 newborns in the general population (1), and it is a disorder of Lysosomal deposit that interferes with the ability of the human body to degrade globotriaosylceramide (Gb3) due to deficiency of an enzyme (α-galactosidase A). Health professionals agree on the importance of creating multidisciplinary groups to get an early diagnosis of diseases such as these often affect different bodies. Therefore, objective Fabry is aimed at a wide range of professionals such as Nephrologists, cardiologists, neurologists, paediatricians, dermatologists and internists, since the precise disease of a multidisciplinary approach for the variety of symptoms that may occur.

“ Have a place online where to exchange information with other specialists in time real and in the most convenient time for the health professional, we believe that it can help to improve the diagnosis of a disease, to be of a minority nature, likely to pose a challenge to the healthcare professional facing a case of this type ”said Javier Rodriguez, Director doctor of Shire HGT.

Objective Fabry, among other benefits, will help professionals facilitate earlier diagnosis and more quickly identify the symptoms of the disease, which may have an impact in a manner very positive on the improvement of the quality of life of patients to patients suffering from this disease.

About Fabry disease

Fabry disease is a disorder of Lysosomal deposit that interferes with the ability of the human body to degrade globotriaosylceramide (Gb3) due to deficiency of an enzyme (α-galactosidase A).

Fabry disease affects both men and women and may occur through signs or symptoms and varying degree, such as cardiovascular or renal dysfunction, pain or burning, intolerance to heat, skin lesions, gastrointestinal disorders, hearing loss, problems with vision, etc.

With regard to the general population, life expectancy of patients with Fabry disease can reduce 20 years for men and 15 for women. The main causes of death are renal failure, cardiomyopathy and events stroke (e.g. stroke).

It is estimated that Fabry disease affects between 8,000 and 10,000 people around the world.

About Shire HGT

Human Genetic Therapies is the Division of the biopharmaceutical company Shire which investigated and developed treatments for genetic diseases low prevalence of rare diseases: Hunter syndrome, Gaucher disease, Fabry disease and Hereditary Angioedema. Its mission is to improve the quality of life of persons suffering from these diseases and their families and to provide innovative drugs to help them cope with their illness.

Shire focuses its activity in specific therapeutic areas to provide excellent service to patients, carers and health professionals.

Referencia:

(1) Meikle PJ, et to the. Prevalence of Lysosomal Storage Disorders. Journal of the American Medical Association 1999; 281: 249-254.

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Puerta de Hierro Majadahonda offers training to all parents of infants born in the Center.

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Puerta de Hierro-Majadahonda provides training to all parents of infants born in Centre

Center was accredited by UNICEF as Hospital IMO “ friend of children ” the month of March.

-the school for parents offers theoretical-practical courses in 14 hours, in sessions of 2 hours a week

-its objective is guide, inform and form as well as to create an atmosphere of confidence among parents and professionals

Spain, January 2012.- the school for parents in the Hospital Puerta de Hierro – Majadahonda, belonging to the public network of the community of MadridThis new course offer training to all parents of children born in hospital following an initiative of the Pediatrics Neonatology unit. Until now this activity was directed at parents of children requiring admission to the neonatal unit. Since the launching of the school, at the beginning of 2010, more than 200 parents have participated in courses.

The objective is to provide parents guidance, information and training necessary to be able to carry out the best care for their children, as well as create a suitable environment in which parents are invited to participate and share their experiences, feelings, concerns and achievements, providing support and assistance at every moment.

The parents school counts with the participation of a multidisciplinary team comprising medical neonatologists, a child psychiatrist, nurses and assistants of Neonatology, social workers and members of the Association of parents of preterm children (APREM).

The training offered by the school consists of seven sessions teóricoprácticas, for two hours each, taught at the hospital, and that includes items about the link with the premature baby and the Kangaroo method; breastfeeding mother and artificial, as well as extraction and preservation of the milk.

Other themes include hygiene and infant massage; hospital discharge and returning home; and the approach of the most common infections, as well as the choking and cardiopulmonary resuscitation in infants. The course is completed with a module of caring for the caregiver, which includes a workshop of relaxation, and general care of the child in the hospital and at home.

Humanization of care

The school for parents is part of the policy of humanization of care developed by the service of Pediatrics of the Hospital Puerta de Hierro-Majadahonda, which includes, among other actions, the statement by UNICEF as Hospital IMO – initiative for the humanization of assistance at birth and lactation-, known as “ children’s friend ”, and the nature of open-door hospital.

Obstetrics and paediatrics services were incorporated into the Centre on the occasion of the transfer of the Hospital Puerta de Hierro to its new location in Majadahonda. Since then his activity has grown steadily, and thus, this year will end with a forecast of more than 3,000 births, of which 10 percent corresponds to preterm infants. Also, the Neonatology unit closed 2011 with over 400 income.

The Hospital Universitario Puerta de Hierro-Majadahonda serves an estimated population of 550,000 citizens, mostly in the Northwest of the region. available for this purpose a team of over 3,000 professionals that allow you to offer 40 surgical specialties.

As for infrastructure, it has 613 beds for hospitalization, all in single rooms. The Centre completed 2011 with an estimated activity of 25,700 income, 530,000 consultations, 132,000 emergency and 24,000 interventions surgical.

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The community has one of the effects of meningitis caused by Pneumococcus lowest in Europe.

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The community has one of the effects of meningitis caused by Pneumococcus lowest in Europe.

according to the bulletin epidemiology of community of Madrid.

-Madrid is the first Spanish region in financing infant vaccine against Pneumococcus

Madrid, January 2012- the impact on the community of Madrid of meningitis caused by the bacterium Pneumococcus is situated among the lowest in Europe with 0.57 cases per 100,000 inhabitants (European in 2006 of 0.3 range and) 1.8 minimum and maximum, respectively). As reflected in the last newsletter epidemiological of the Ministry of health of the community of Madrid, which elaborates the epidemiology service.

In addition, the community of Madrid is located well below the average incidence of meningitis pneumococcal in Spain with a value which reaches the 1.08 per 100,000 inhabitants, according to data from 2008.

The reduction of cases of meningitis by Pneumococcus in the region is due, and argue the authors of the report, largely due to the introduction of the Pneumococcal conjugate vaccine administered since 2006 to children under two years, and that finances only the community of Madrid in Spain, in addition to Galicia from this same year

Currently, the health centres in the region administered vaccine to children with a pattern of three doses at 2, 4 and 15 months of age. It is expected that this year it vaccinated a total of 56.670 children. Currently, administered the vaccine called pneumococcal trecevalente, which improves the previous vaccine heptavalente in protection against invasive pneumococcal disease, by incorporating antigens against new serotypes are circulating and causing invasive disease. The immunization coverage rate is the highest % 98,15.

Pneumococcus (Streptococcus pneumoniae, scientific name) is a major cause of illness and death worldwide. It is responsible for a broad spectrum of diseases: pneumonia, meningitis, infection of the middle ear, sinus, trachea, bronchi and lungs; and produces infection of central nervous system, heart valves, bones or joints. Pneumococcal disease mainly affects children under two years and adults over age 65.

They bajan pneumococcal diseases

In total, during the year 2010, 462 cases of invasive diseases all caused by the pneumococcus, a reduction from the previous year (with 662 cases) were reported in the community of Madrid. The totality of invasive disease caused by the pneumococcus is also situated in Madrid among the lowest in Spain (7.15 cases per 100,000 inhabitants with 12 cases of Galicia, in 2009 or 20.3 in Catalonia).

The reduction in the incidence of this disease in different age groups suggests a group because of vaccine immunity effect, argue the authors of the epidemiological bulletin.

After the introduction of the pneumococcal vaccine conjugate in the child immunization schedule, the Ministry of health included as Declaration mandatory disease invasive pneumococcal disease in 2007, improving epidemiological surveillance of disease; What is allowing assessing the evolution of the incidence of this disease.

The World Health Organization (who) considers that given the high burden of pneumococcal disease in children and adults, prevention of pneumococcal disease should be a priority both in industrialized and developing countries, and is considered as high priority the introduction and maintenance of high vaccine coverage in children

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Press release of the Spanish society of plastic surgery, reconstructive and aesthetic (SECPRE) together with the Spanish Association of aesthetic surgery (AECEP).

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Release press of the Spanish society of plastic surgery, reconstructive and aesthetic (SECPRE) together with the Spanish Association of aesthetic surgery (AECEP).

Madrid, January 2012.- in the last few days there have been new information on PIP prostheses. In addition, the International Society of Aesthetic Plastic Surgery (ISAPS) has issued a communiqué in which it supported the recommendation that patients with breast implants PIP (or M-Implants, manufactured by ROFIL Medro in the Netherlands) are subject to removal or replacement of the same.

For this reason, the Spanish society of plastic surgery, reconstructive and aesthetic (SECPRE) together with the Spanish Association of plastic surgery (AECEP) wish to express public opinion to:

-today, should be noted that evidence that link there is no breast implants PIP with the development of a possible cancer, although potential complications of inflammatory type by the rupture of the same, being evidence or suspicion of breakage of the implant an indication of explantación immediate.

– despite the lack of scientific evidence on the relationship of PIP implants with processes genotoxic or other different from already-known pathology, and due to its important manufacturing defects, it would be advisable to assess together with the plastic surgeon withdrawal or substitution of these implants as a preventive measure and without urgency.

-the SECPRE and the AECEP maintain a firm commitment to close collaboration with the Ministry of health, social services and equality, the Organization Medical College, the European Commission Health Security Committee, and the rest of scientific societies involved, in order to continue to seek information and be next to the patients.

– we are aware that there is a considerable number of prosthetic PIP implanted for no plastic surgeons of the SECPRE and/or in the context of business sector of cosmetic surgery than by how they work can promote that patients are unaware of their surgeon reference. With the aim of helping those carriers of implants PIP who are neglected, the SECPRE is working to provide its network of Surgeons of form individualized to those women who require.

-the SECPRE has reached an agreement with the most important manufacturers of implants that will facilitate implants new, with a minimum cost and maximum quality, patients requiring the replacement of implants PIP.

-the SECPRE and the AECEP suggest as a protocol for patients carriers of implants PIP or in doubt be:

1. Women carriers of mammary prosthesis must check the type of implant that they lead through card (mandatory) implementation, must have facilitated you your plastic surgeon. In case of not having or having lost, you can go to the Centre in which intervention is practiced and require a copy of it.

2 They were prosthesis PIP, you go to the plastic surgeon who operated, who prompted tests clinical and radiological appropriate (mammography, ultrasound breast and axillary, NMR) to a correct valuation. If it has not been operated by a member plastic surgeon of the SECPRE and is disoriented can go to our society to recommend a suitable professional that will assist you in a selfless way.

3. It is recommended to contact with associations affected by PIP prostheses.

4. Depending on the State of the prosthesis and advice of your plastic surgeon will be the best therapeutic decision and the right moment for his explantación.

5. In the event that the patient does not wish the removal of the prosthesis, and provided that these are in good condition, we recommend a clinical and radiological follow-up every 6 months.

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The CECOVA and nursing schools are meeting with Luis Rosado to address “the largest cut wages and loss of rights at work in the history of nursing”.

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El CECOVA and nursing schools are meeting with Luis Rosado to address “ the largest cut wages and loss of rights at work in the history of nursing ”.

collegiate nursing associations keep a round of contacts with health care unions to jointly seek alternative solutions to the cut.

valencia, January 2012.- the Council of nursing of the Comunitat Valenciana (CECOVA) and official colleges of nursing in Valencia, Castellón and Alicante have requested keep an urgent interview with the Minister of health, Luis Rosado, to express the “ unease ” the collective nurse by Decree-Law 1/2012 of urgent measures for the reduction of the deficit in the Generalitat Valenciana, which is “ the biggest cut wages and loss of rights at work in the history of nursing ”.

In response, the President of the CECOVA, José Antonio Avila, and collegiate Presidents of nursing of Valencia, Castellón and Alicante, Juan José Tirado, Francisco j. couple and Bethlehem Payá, respectively, will also keep a round of contacts with health care unions in the Valencian Community for “ offer their collaboration in the search for alternative solutions to those adopted by the Council without prior dialogue and consensus with representatives of professional and trade union organizations of the health ”.

Ávila announced that the Organization autonomous College of nursing “ will make every effort to collaborate with other health professional groups, to express rejection of wage cuts and labour rights measures envisaged by the health administration with a single voice ”. Restrictive measures which may directly influence the decline of the quality of care received by the users of the Valencian health.

“ Union is strength and is the time that all professional and Trade Union forces to unite in a great deal to cut without precedent and measures of impact on the collective health ”, assured the President of the CECOVA.

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Surah Al-Rehman – The Ultimate Free Remedy for Incurable Diseases

(By Listening Only- 20 Minutes Only)

Kindly download the Surah “AL-REHMAN” (recited by Qari Abdul Basit without translation) from here.


Treatment Plan

Just Listen to it three times a day (morning, afternoon, evening) for seven consecutive days using following procedure:-


    Before listening:

  • Close your eyes
  • Feel your self in front of ALLAH Almighty/ God
  • Then listen to it with greater concentration and closed eyes

    When the recitation/ AUDIO is finished:

  • Open your eyes and take half glass of water
  • Close your eyes again and say “ALLAH” three times in your heart with deep affection/ love
  • Then drink the water with closed eyes in three sips

Surah Al-Rehman – The Ultimate Free Remedy for Incurable Diseases

(By Listening Only- 20 Minutes Only)

Kindly download the Surah “AL-REHMAN” (recited by Qari Abdul Basit without translation) from here.


Treatment Plan

Just Listen to it three times a day (morning, afternoon, evening) for seven consecutive days using following procedure:-


    Before listening:

  • Close your eyes
  • Feel your self in front of ALLAH Almighty/ God
  • Then listen to it with greater concentration and closed eyes

    When the recitation/ AUDIO is finished:

  • Open your eyes and take half glass of water
  • Close your eyes again and say “ALLAH” three times in your heart with deep affection/ love
  • Then drink the water with closed eyes in three sips