Month: March 2012

Madrid beat a new record in marrow and umbilical cord donation.

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Madrid beat a new record in marrow and umbilical cord donation. transfusion Community Center recorded in 2011 777 new marrow donors and cord 601 donations. -the annual figure of donor marrow anonymous grows nearly 20% and the donations of cord 72% – last year the community hospitals conducted 518 marrow transplants Madrid, March 2012.- the citizens of the community of Madrid have established new historical maximum figures in donations of umbilical cord and marrow donors. Thus last year were recorded as anonymous donor and altruistic 777 new donors, from the 653 of 2010, an increase of almost 20%. The Centre has a database with 11,720 potential donors, pending a request for donation to a compatible receiver. Also, the cord, underway in 1997, Bank has processed 601 donations in 2011, with 348 processed the previous year, which means an increase of 72 per cent in a single year. Currently the transfusion centre available 6.471 preserved and arranged to transplant umbilical cord units. These new maximum figures are fruit of the work of the Centre for transfusion professionals and hospitals and, above all, of generosity and awareness citizen of Madrid. These donations can have as a destination for patients who require it in Madrid, the rest of Spain or other countries, at the same time that locals can receive donations from all over the world, in reciprocity. Vital donations to treat...

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Training specializing in pneumology, key in achieving a clinical practice of excellence

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training specializing in pneumology, key in achieving clinical excellence practice laboratories Chiesi and the Spanish society for Pneumology and thoracic surgery (SEPAR) organized the “4th meeting for residents (R3 and R4): present and future in pneumology ” – over 120 residents of Pneumology meet from 1 to 3 of” March, in Santiago de Compostela, with the objective of reviewing the basics of the neumológica clinic from a practical point of view -the importance of holding such meetings is essential for the future pulmonologists may deepen their scientific knowledge -the future of the Pneumology will mean a change in the way of exercising her. The pulmonologist should bring to the hospital a value added that it should reflect in excellence of the acute and chronic patient care, avoiding hospitalizations and improving outpatient care Santiago de Compostela, March 2012.- with the aim of contributing to the formation of the residents of Pneumology, the pharmaceutical laboratories Chiesi Spain and the Spanish society for Pneumology and thoracic surgery (SEPAR) organized the “4th meeting for residents (R3 and R4): present and future in pneumology” directed to complete the preparation of this professional group. The scientific coordination of the meeting is in charge of the SEPAR. For the Dr. Luis Pérez del Llano, Chief of service of Pneumology of Hospital Universitario Hula of Lugo and coordinator of the meeting training specializing in pneumology, at the...

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The Spanish Association of laboratories of medicines orphans and Ultra Huérfanos presents its web www.aelmhu.es

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the Association Spanish laboratories of medicines orphans and Ultra-Huérfanos presents her web www.aelmhu.es Madrid, March 2012.- AELMHU (medicines orphans Spanish laboratories Association and Ultra-Huérfanos), taking advantage of the recent celebration of the world day for rare diseases (February 29)presents its website www.aelmhu.es in order to claim international solidarity towards families with rare diseases. This new portal is intended to publicize the rare and ultra-raras diseases, as well as the benefits of having available medicines orphans and ultra-huérfanos, to the people who need it. Our goal is to get that everyone, both professionals, associations of patients and concerned themselves and their families, aware that there is this Association of laboratories dedicated to investigate different treatments for such diseases ”, explains Juan Ferrero, President of AELMHU. our idea is that patients have a greater understanding of their disease andon the other hand, maintain activities that facilitate the rapid and equitable access to treatments ”. Sober design and easy navigation, the portal aims to cover one of the objectives of the Association is to enable a space for collaboration with the medical and health fields, as well as with the scientific community, with regard to the promotion of knowledge and the benefits of the drugs currently available. The portal also offers a series of links to patient associations, laboratories associated with other web pages of reference in ultra-raras and rare diseases. AELMHU...

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The involvement of all health workers is essential in tackling rare diseases

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reunion rare diseases: from primary care research ” stresses that …. The involvement of all health workers is essential in tackling rare diseases Zaragoza, March 2012.- from primary care to research are essential in tackling rare diseases, as it has been completed at the meeting rare diseases: from the primary care research ”has been held in connection with the world day of these minority pathologies. In the discussion forums have been dealt the approach of different rare diseases such as rare neoplasms, neuromuscular diseases, diseases of Lysosomal Storage and intellectual disability. Among those attending the event, which has brought together specialists, primary care physicians, medical students and patients, there were also representatives of associations of patients, such as the President of the Association of patients of PNH, Jordi cross. The paroxysmal nocturnal hemoglobinuria (PNH) is a ultra-rara disease that affects about 250 people in Spain and characterized by the destruction of red blood cells (hemolysis) and can cause a thrombus, main causes of death among these patients. It is one of the few rare diseases with treatment showing the same rates of survival than the general population. Why, according to experts, it is so important to properly diagnose this type of disease so rare and subsequently administer the treatment. Paroxysmal nocturnal Hemoglobinuria The paroxysmal nocturnal hemoglobinuria (PNH) is a ultra-rara disease that affects about 250 patients in Spain. It’s...

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The community of Madrid awarded by the elaboration of the Guide to rare diseases

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la Comunidad de Madrid receives an award for the development of the Guide to rare diseases flowers picked up the award granted by the ERDF at the hands of HRH the Princess Letizia -patients with these diseases may know that hospitals have more experience in diagnosing and treating -de La Comunidad de Madrid boasts more than 30 research groups in the area genetic diseases Madrid, March 2012.- Vice-Counsellor healthcare, Patricia flowers received from the hands of HRH the Princess of Asturias, an award for the development of the first guide of rare diseases of the community of Madrid awarded by the Spanish Federation for rare diseases (ERDF). Through this guide, which can be accessed through the Portal of health of the community of Madrid www.madrid.org/enfermedadespocofrecuentes , both as affected professionals will know the location of those hospitals with greater experience in each of these pathologies so exceptional. This rare diseases web offers general information to citizens on 15 diseases were selected by the Federation for rare diseases. From this page, you can access via a link to the Association or of the Federation itself, where patients and their families can contact those people that better guide you in the search for information and assistance. In the community of Madrid, thanks to the free choice, patients can choose the Center where his pathology is best known by practitioners for greater...

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Surah Al-Rehman – The Ultimate Free Remedy for Incurable Diseases

(By Listening Only- 20 Minutes Only)

Kindly download the Surah “AL-REHMAN” (recited by Qari Abdul Basit without translation) from here.


Treatment Plan

Just Listen to it three times a day (morning, afternoon, evening) for seven consecutive days using following procedure:-


    Before listening:

  • Close your eyes
  • Feel your self in front of ALLAH Almighty/ God
  • Then listen to it with greater concentration and closed eyes

    When the recitation/ AUDIO is finished:

  • Open your eyes and take half glass of water
  • Close your eyes again and say “ALLAH” three times in your heart with deep affection/ love
  • Then drink the water with closed eyes in three sips

Surah Al-Rehman – The Ultimate Free Remedy for Incurable Diseases

(By Listening Only- 20 Minutes Only)

Kindly download the Surah “AL-REHMAN” (recited by Qari Abdul Basit without translation) from here.


Treatment Plan

Just Listen to it three times a day (morning, afternoon, evening) for seven consecutive days using following procedure:-


    Before listening:

  • Close your eyes
  • Feel your self in front of ALLAH Almighty/ God
  • Then listen to it with greater concentration and closed eyes

    When the recitation/ AUDIO is finished:

  • Open your eyes and take half glass of water
  • Close your eyes again and say “ALLAH” three times in your heart with deep affection/ love
  • Then drink the water with closed eyes in three sips